Boards & Councils
Patient Advisory Board
About the Patient Advisory Board (PAB) and patient involvement in IDERHA.
To ensure the patients voice strongly resonates in IDERHAs technological achievements and policy recommendations, IDERHA installed a Patient Advisory Board (PAB). The PAB is installed by our partners, The European Patients’ Forum (EPF) and Lung Cancer Europe (LuCE), and consists of individuals from outside the consortium.
The ultimate goal of IDERHA is to improve patient care and medical research for lung cancer patients. Including the patient perspective in the project is key to achieve success and ensure optimal adoption of IDERHAs technological solutions and policy recommendations. The PAB was formed to maximize patient involvement throughout the project.
The primary role of the PAB is to provide a patient/user-centric perspective in monitoring and reviewing activities within the IDERHA project. The PAB will play a pivotal advisory role across the project activities and contribute to the dissemination and communication efforts to their respective communities. As one of three advisory boards within IDERHA, the PAB provides an invaluable patient perspective throughout the project’s lifecycle.
To achieve this, the PAB will be asked to provide input to inform policy priorities, engage in stakeholder meetings, monitor project progress, offer feedback on the patient journey, and attend project meetings. The feedback of the PAB will be incorporated into decision-making processes through various mechanisms and will thereby ensure the patient experience is integrated into the work of IDERHA.
The PAB comprises twelve members representing various countries (Austria, Germany, Greece, Portugal, Romania, Slovak Republic, Spain and the UK) and disease areas, including diabetes, lung cancer, rheumatic diseases, spina bifida, and myeloma. Their backgrounds and experiences contribute to a diverse and comprehensive understanding of patient needs and priorities. All PAB members have been active members of patient organizations for several years, and they have also participated in various European projects.
